@zinnia55 I have had the same. So far I have been ok on Plaquinil. 400mg 2x a day. I have seen an OM but he doesn’t really treat. Took two years to find him. He Just diagnoses and started the Plaquinil but wouldn’t follow. I found a dermatologist who gave me the clobetasol combo like
you. Use it last ditch when really bad. How long were you on Plaquinil until kidneys affected? I would like to reduce dosage. It has been 7 months. My lips and tongue are the worst as well. Have not found anything to make them feel normal. I think I am going to find an oral surgeon who sees oral Cancer patients to be followed. Work in progress.