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Mom is hearing music that does not exist

Caregivers: Dementia | Last Active: Mar 9 9:22am | Replies (17)

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My Mom is 98. MES started about 3 years ago. Came and went and is now back loud and clear. It tortures her. She has severe hearing loss, which many Drs believe is the cause. The brain creates sound to fill in the blanks. For almost a year we found leaving a TV on all day created enough noise it drove away the music. She started having mini strokes about 5 months ago. Since then the music is back, TV on or off.
She is miserable. I don’t know what to do for her. Because of her age Drs are resistant to prescribing any anti psychotic medication. So she suffers, as does those around her.. Hence the reason I’m here typing at 1:25 AM.

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Replies to "My Mom is 98. MES started about 3 years ago. Came and went and is now..."

@leeleip I am so sorry you are having to deal with this as well as your mom. It shows your love and empathy for her for sure. I had never heard of MES until I read your post. My mom is not to that point yet and I hope she doesn't experience that. I am sure you have tried many things to help. My first thought was wondering if music would actually help? There are meditations on YouTube, like Monks playing Tibetan bowls and other things. I wonder if anything like that might help? White noise or something? Hang in there.

@leeleip , I wasn’t aware of this condition either. If the sounds are causing her distress and/or anxiety, I’d either revisit the medication idea with her doctors or get new doctor’s opinion. Quality of life is a priority for many people and risks often come with medications. However, the risks can be assumed if they bring relief. At a full age, I would think a patient or her caregivers could make that decision with full information.