← Return to Rectal cancer and fecal incontinence: Any remedies?

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Profile picture for janspons @janspons

@rjjacobsen I saw your post come up in a psyllium search on Mayo Connect. I don't have colon cancer, am in a different group for IBD, I have a jpouch (no large colon) due to ulcerative colitis which began 40 years ago, I got my jpouch in 1996, then diagnosed with crohns in 2002. I have done quite well with my jpouch & bowel control up until about 30 months ago, when I began having fecal incontinence while asleep. I have been on meds for inflammation, and also have taken loperamide & metamucil, and some of the fiber capsules. At this point none of them seem to be working very well, daytime hours are fine it is just at night, I wake up 2-6 times per night, some are better than others. I have read where the whole psyllium husk because of the sugar in some of the other products. I appreciate the info that you listed and just ordered the Organic India brand. I may have other issues going on, but don't have an appt with my GI until mid April. I'm not sure if this is too personal, but wondering if you have a jpouch or an ostomy? I am thinking I may end up have an ilealostomy in order to have more control. I wish you the best. My husband passed from stage 4 colorectal cancer in 2008 that was undetected until it was too far along. #coloncancerawareness month is so important. Blessings to you.

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Replies to "@rjjacobsen I saw your post come up in a psyllium search on Mayo Connect. I don't..."

@janspons

I am fortunate to not have neither a jpouch nor a ostomy. Mayo connected my small intestine directly to my rectum, so I was fortunate. Alas, I have no personal experience with either.

Updating from my original post, I've substituted lightly salted white popcorn cooked in coconut oil for the fiber because I never could get things to work consistently with Metamucil in powder or capsule. That's probably not an option for you though.

Wish I had some helpful advice. I feel sorry for your situation and hope you find some relief.