@loyd1957 For me, it started 5 years ago with one of my successful knee replacements. They were fine for 10 years, we moved, and something triggered the gene. It is very hard to advocate for yourself because nobody believes the pain is that bad and all you can do is lie down. Finally, the second chronic pain doctor (MD) I saw diagnosed based on symptoms over the past 5 years! He put me on Naltrexone so I could do PT and get stronger. You absolutely have to have a counselor/licensed social worker to talk to. I keep a journal and always put my notes from doctors, pt, appointments. Find podcasts, websites, etc. for info. Bring it up in your GP appointment. Good luck.

@loyd1957 Also, I misspelled it: Danlos. Ehler’s-Danlos syndrom