@ctflyr Hi, what a great idea! My oncologist who had 10+years of research prior to clinical work, whom I trust to have the knowledge (I hope!) of current effective treatments probably has heard of Votrient, I will check. Months ago he had 6 patients with LMS). My daughter is a doctor (a pediatrician!) who's been involved in every exam/consulting, along with my wife. She's been quite an emotionally stabilizing influence on my wife and me. Our oldest 8 years ago when he passed from colon cancer at 49 she was amazing how she handled the situation as he died in the hospital (sepsis).
I live in a major metro area, not Houston or Rochester, Mn. to access treatment. I know there are satellite clinics from those very reputable, especially for cancer treatment centers. Were there any symptoms with Votrient?
I'll certainly mention Votrient (Pazopanib) next week on a phone visit from the oncologist...we do that more now. Chemo was not started as he said it's not good to have a current infection, since it recurs so frequently and the treatment causes lowering the resistance of the body. Last week I had my third CTscan revealing no growths in my lungs (where some nodes were found in sept.) and doubled in size by december. I have no idea what this has on my near future, but I'm a little happier. Thanks so much for your comments...caring shared with me nd others on this blog.