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Ray Kemble avatar

Axonal peripheral neuropathy: Finally, a diagnosis!

Neuropathy | Last Active: 6 hours ago | Replies (167)

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Profile picture for debbieod @debbieod

Thanks Ray! From all my research, I thought that would be the answer. But in life, I have learned not to assume- usually the hard way.
This group inspires me in many ways. From calm- to trying another way to cope. Emotionally and physically. I do know, it brings my troubles into perspective resulting in thankfulness and a little more iron in my soul.
You’re a good communicator and mentor. Straight talker. I can value those words.
Best to you!
debbieo

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Replies to "Thanks Ray! From all my research, I thought that would be the answer. But in life,..."

Good morning, @debbieod

You named it: straight talk. Straight talk is one of the three things I can't live without: straight talk, a sense of humor, and a good cup of Sumatran coffee. 🙂 This group inspires me, too. It has inspired me since finding it way, way back in '23 when I was first diagnosed. I remember driving away from the neurologist's office––it was early evening, rush hour, the Interstate was bumper-to-bumper––doing my damnedest to re-define certain words so they might not sound so wicked. "Incurable." Sure, okay, Doc, as in "not easy to cure;" in other words, Doc, not easy to cure––at least until you give "fix" me. "Idiopathic." Unknown? What do mean "unknown," Doc? You just told me, Doc, it's called peripheral neuropathy; so, what else is there to know? Such was my crazy thinking on the drive home. I'm so glad I thought to pull up a couple of trusted sites on my laptop, sites like Johns Hopkins and Cleveland Clinic––and Mayo, which led me Mayo Clinic Connect. And boy, oh boy, am glad! 🙂

Uh-oh. It's time for another cup of Sumatran coffee …

Cheers, @debbieod !
Ray (@ray666)