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Why are dosages for estrogen suppression drugs one-size-fits-all?
Breast Cancer | Last Active: Apr 19 1:45pm | Replies (103)Comment receiving replies
@kherman8434
I don't know what has to happen so that they will start to listen to patients because I think it's better to know what your numbers are for sure before starting that med.
I did not take an AI my breast cancer was dcis her2 negative stage 0. I had 20 rounds of radiation. 1 lymph node removed which was clear.
They immediately took me off my hormone therapy the day my GP told me I had breast cancer which put me into one horrid year of menopause. I had been on it for 13 years and I felt great. Now I feel like crap and I'm exhausted all the time and have brutal hot flashes still it's so frustrating.
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@sue417
Crazy that the standard is 1 mg even if estrogen level 30 +/- or under 15! Makes no sense that there is no 0.5 mg option for those with low estrogen level or bad side effects. Taking every other day an option, it doesn’t seem ideal. The other option is going to a special pharmacy that does compounding. It is unlikely a doctor will write the order (lack of research and potential liability) since “ the standard of care” is 1 mg!
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@sue417 Yes, I agree with you. The docs test your cholesterol level before putting anyone on statins. Why not before AI's?
I'm on Anastrozole and I take it every other day as I'm very small and only weigh 100 lbs but haven't told my doctor because he and the NP just don't listen! When I complain of side effects they act like I'm speaking another language and tell me to go to other doctors to fix the side effects. It's just astonishing to me that these AI's aren't prescribed in lower dosages. I've told them before that I was taking Exemestane every other day (before I stopped) and was dismissed and told it was "ineffective". Is it just so they don't get sued for malpractice? Anyway, I'm doing just fine now as I have taken my health into my own hands and will continue to take it every other day. So far, so good!