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Profile picture for akerslauren @akerslauren

@taylor05 amen! But I’m finding out over the years, particularly this last year, that there are so few doctors equipped to deal with patients that aren’t textbook. You’d think that sort of thing would be more up rheumatology’s alley, but not that I’ve experienced so far. My rheumatologist just messaged me this morning to go to the ER. I guess she was tired of me messaging her with updates on my symptoms. She told me that she wasn’t convinced that the new rectal bleeding and ulcer on my vagina that popped up in the last few days are related to rheumatology. So I just finished having to try and explain a complicated medical history in the most condensed, pertinent way to an ER doctor that most certainly does not give a hoot about an autoimmune patient that is not actively dying lol. Once my bloodwork comes back normal, I’ll be spinning my wheels again and seeing what the next hoops I need to jump through in order to “prove” that I’m ill. It’s so freaking exhausting and degrading.

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@akerslauren
Well you need to get another Rheumatologist. I see a Neurologist at John Hopkins and my Rheumatologist seems engaged and trying to help me find more answers. I'm still going to find one at John Hopkins though. I have so many autoimmune diseases plus!! Good luck to you!!