← Return to MAC, Pseudomoas Aeuroginosa, Bronchiectasis

Discussion
tamarrillo2 avatar

MAC, Pseudomoas Aeuroginosa, Bronchiectasis

MAC & Bronchiectasis | Last Active: Mar 8 9:39pm | Replies (40)

Comment receiving replies
Profile picture for kaybast @kaybast

@tamarrillo2 i had it last year as I had a UTI , A lung infection, a sinus infection and a eye infection. A sputum was tested from the lungs and a culture taken from the sinuses . Both showed Pseudomonas . My white count was up . I was put on IV of Zosyn for 14 days ..my white count came down so they took me off . Infectious Disrase Center treating me.
Now this year , last week I went to ENT Dr for update and he took a culture because he said it looked the same as last year . It came back as Pseudomonas now colonized . Ironically, two weeks ago I was bringing up green sputum for a week then it became a grey color so no doubt it’s back in my lung. I’m back under direction of Infection Disease Center for IV treatment again with a follow up with ENT Dr in 28 days for another culture . I’m very motivated to get rid of these infections as my Rheumatologist has identified several
High inflammatory markers in my blood , my bones and my lungs And will treat me with infusions of a biotic of Remicade but NOT until I am free of all infection … the Remicade suprese the immune system so that the infusion can go after the high inflammatory areas so no infection can be in the body otherwise if will spread . So I really need to get this Pseudomonas out of my system so I can start the infusions and I will feel better ! Any recommendations will help knowing right now I’m on IV Zosyn …many thanks !

Jump to this post


Replies to "@tamarrillo2 i had it last year as I had a UTI , A lung infection, a..."

@kaybast
Did your Dr not explain that once colonized, the pseudomonas is always going to be there? The IV treatment can knock it back but not get rid of it. I should think that the Remicade would be very risky for someone with Pseudomonas colonized. Hopefully you can explore other options.

@kaybast about the uti. I have had one that has come back 4 times now. Is that somehow connected to having Mac? As I have never had before. But now on my 3rd recurrence of Mac. And seem to only shake the uti for a bit and keeps coming back.
Going for ultra sound on bladder today to check for other possible underlying causes.