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Ray Kemble avatar

Axonal peripheral neuropathy: Finally, a diagnosis!

Neuropathy | Last Active: 6 hours ago | Replies (167)

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Profile picture for debbieod @debbieod

I too would like a name. A diagnosis other than idiopathic. Like you I found calmness here. And encouragement.
The question I still have for you.
Did the gaining of knowledge change any way a physician was treating you? Was the protocol any different after diagnosis?
You have been a encouraging and interesting read on these boards.
Thank you for the time you have given. I feel it was a personal gift of - you.
Treasure shared .
Regards
debbieo

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Replies to "I too would like a name. A diagnosis other than idiopathic. Like you I found calmness..."

That's a good question, debbieod (@debbieod).No, I don't think so, I don't think any of my doctors treated me differently when I was able to say in specific terms the nature of my PN. But I'm a lucky guy: I've got a good team of doctors. What I can't say is whether any one of my doctors (my PCP and a half dozen specialists) privately thought any differently before suggesting some new medication or mode of therapy. What can say is that none ever said, "Now that I know the kind of neurology you've got, Ray, I suggest that you consider … " That never happened.

Cheers!
Ray (@ray666)