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Pacemaker & ICDs: Introduce Yourself & Meet Others
Pacemaker & ICDs | Last Active: 8 hours ago | Replies (167)Comment receiving replies
Hi, I'm Neal, aka, SEPilot. A relative newbie to the world of ICD wearers as a result of a VT episode with loss of consciousness. So are my ICD has not been a shocking experience, but I can sense the pacing the device provides. Throwing a lot of PVCs which are uncomfortable, but cardiology seems relatively uninterested. Also have a 4.4 AATA as a sequel to the aortic valve job. Not much cardio interest in that either. My cardiologist gives me the impression that since I have an ICD now, there isn't much else to be done for me. It is like, well you've reached the summit. Enjoy the view.
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@sepilot Welcome to the ICD group, Neal! I see you are also in the COPD group. Are your cardiologist and pulmonologist working together as a team? The fact that your cardiologist seems "relatively uninterested" in your PVCs and 4.4 AATA is concerning because you are trying to learn as much about your unique situation to live your best life. I just looked up AATA, not familiar with that acronym, but knew that PVC was premature ventricular contraction (not a plastic pipe used in construction, context is important) because I have it, too. I have an ICD named Buddy, that paces, I developed dizziness and giddiness with a couple of syncope after a septal myectomy. May I suggest that you get a second opinion with a cardiologist who will address your concerns? Are you able to be seen at a COE (Center of Excellence) for heart and lung issues? Have you received guidance in what practical behaviors in terms of diet (nutritionist/dietician) and exercise (cardio rehab) you can do to maximize your quality of life?