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Polymyalgia Rheumatica (PMR) | Last Active: Mar 5 11:55pm | Replies (101)
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@dadcue People that only have PMR can choose how much pain they want to live with. If you have GCA with or without PMR, you can't take a chance on letting the GCA get back out of control. The GCA is like burning embers. If you let it flare, it can do a lot of damage.
Replies to "@dadcue People that only have PMR can choose how much pain they want to live with...."
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@jeff97
I have never been diagnosed with GCA ... only uveitis. I don't know precisely how many uveitis flares have happened because I lost count at 30. Many times the flares were panuveitis.
"Corticosteroids are the primary treatment for panuveitis. They’ll help bring the inflammation down to protect your vision and also treat your discomfort. This is the first priority when treating panuveitis.
Your provider may prescribe steroid pills, steroid eye drops or a steroid injection into your eye — or all of the above, depending on your condition. Some people may need to take them on a long-term basis."
https://my.clevelandclinic.org/health/diseases/panuveitis
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Part of the reason I'm still on Actemra is because uveitis will likely flare up again with no treatment. My ophthalmologist doesn't think Actemra is the best biologic to prevent flares of uveitis and says, "it is just a matter of time until it does." I know 60-100 mg of Prednisone will be prescribed whenever uveitis flares up again. Until it flares again, I would rather stay on Actemra.
Fortunately when I report uveitis symptoms -- I am usually seen within an hour. My ophthalmologist reassures me it isn't GCA.