I’m glad to find this forum, and sad to hear that Reclast long term side effects are a thing. 63 (F), height loss of 1” in a year, -2.7 lumbar score—thus Reclast.
I’m six days out from my first infusion. Ten hours after infusion I had chills, a fever of 101, nausea and vomiting, intense shoulder pain, and overall muscle and joint pain. Couldn’t leave the house the next day. Symptoms continued and I went to ER where they insisted I probably had the flu, so tested me. Negative, of course. Also gave me a CAT scan because I had stomach pain—at least they gave me Zofran first. But the fluids I was desperate for came only 3 hours later.
Day 6, appetite poor, slight nausea, low grade fever, total exhaustion.
I feel like this isn’t getting better anytime soon. Will ask for blood work next week if there’s not significant improvement.
Interesting: I asked the infusion nurse if I could get a bag of fluids after the infusion, knowing dehydration was a possible side effect. She said they used to do that before Covid, when fluids got scarce. They never resumed them because they were expensive and “nobody died” without them.
I hear your all’s frustration about Drs insisting symptoms aren’t related. Keep pushing to be listened to. Refuse to be pushed aside.