← Return to Vasculitis or connective tissue disease breast involvement?

Discussion
Comment receiving replies
Profile picture for akerslauren @akerslauren

@SusanEllen66 I asked my rheumatologist on Thursday about trialing a short taper course of prednisone, but she said they don’t like to do that until a diagnosis is clear. My labs just came back, but nothing super helpful in pinning down what this is. My ANA somehow went DOWN to 1:80 homogenous. I’m sooooo annoyed because I already know she’s going to tell me that it isn’t clinically significant if they don’t view my previous 1:160 as meaningful. RNP ab are still positive, but now rheumatoid factor is also a little elevated (10 with a reference range of 6). ANCA totally negative though. I’ve literally never felt worse in my life, and that’s including post childbirth. I’m used to feeling crappy at this point, but it’s on another level. That’s the only reason I’ve researched anything, really. I’m just desperate for an end to all of this. It’s like as soon as I get adjusted to living with one group of symptoms, another group pops up in addition to or in place of. I’ve been to so many appointments lately and really hope it doesn’t come down to the ER!

Thanks for your time and insight < 3

Jump to this post


Replies to "@SusanEllen66 I asked my rheumatologist on Thursday about trialing a short taper course of prednisone, but..."

@akerslauren research something called TRAPS. Someone on here just wrote about it. It’s a rare inflammatory disease.

@akerslauren 2nd message.
Thank you for thanking me for my time. My clock is ticking slowly now, and soon the alarm will ring and I will fall asleep.😴

@akerslauren you really need another Dr.