Severe osteoporosis at 76: Is it too late for help?

Posted by stayingalive @stayingalive, Mar 2 9:01pm

Today, my endocrinologist said it was too late to make my bones stronger. I have severe osteoporosis and have had several compression fractures in my back. I'm 76, but I'm not really ready to give up, but I don't know what to do.

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

Treatment might save you the pain of a fracture. Which is a good thing.

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Profile picture for andieg @andieg

I appreciate that @squitirogloria 💕

I purchased a medical grade red light therapy pad intended to reduce pain in August, 2024. It was 1/2 off (even the “medical grade” ones often are).

You may have seen advertisements for red & blue light therapy masks with pictures of people wearing robot looking masks (😂) to address wrinkles & blemishes . Mine resembles a heating pad with dimensions of about 7” x16”.

I don’t mention the brand I purchased because
a. There have been improvements since I purchased 19months ago
b. Your research may lead you to different conclusions.

I recommend considering researching some on what medical grade red light is/how it works, how it can treat pain and, what types of products are for what conditions; for example, the face masks often include blue light and address acne and other skin conditions.

I decided to get a red light pad after reading several accounts from people in EDS /chronic pain FaceBook groups who said they were helped by the red light therapy. So I researched some and found while many “research studies” were done by the companies themselves (common when a product is new), I saw /read enough positives / promising information that I decided to pull the $300 out of savings to get.

I’ll add that I believe independent studies are underway. And, my sister said after her dermatologist did a laser treatment to address the pervasive pre cancer on her face, they followed it with red light therapy. ! I think the anti-inflamitory benefits may be generally accepted now (but don’t quote me!).

The type of pain red light seems to address may vary, & seems to be more muscle related. And I don’t believe it’s a miracle cure, but it helps put me to sleep after using on my neck and back and, sometimes it helps with my hip pain. At the very least it feels good to me as it seems to be a deeper penetrating heat than a heating pad. But again, everyone is different.

I believe most red light therapy pad product companies recommended to use it 15min at night every night for 2 weeks, I think, then 3x per week?

In terms of bone benefits- there are no scientific studies and I only saw one or two mentions which were claims from a manufacturer so I am very skeptical, but choose to be hopeful. 😊

Hope my babbling helped a little 🫣😊

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@andieg I'm curious, how long have you been using red light therapy and has it improved your DEXA scores?

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You do NOT give up! Why can’t you go on Prolia ( a shot every six months)? Are you seeing an Endocrynologist ( specialist for Osteoporosis). A regular Dr is not qualified. Always get a second opinion. You have plenty of good years ahead of you ❤️❤️

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Profile picture for jozer @jozer

@gravity3 nope wasn’t really discussed or offered. Current endo said he doesn’t like prolia but didn’t hear about anything else except reclast which scared me as it was a once a year drug! So he started fosamax, after minor gains in that he scheduled Reclast and I did it. A rheumatologist I saw when I made the rounds of getting other thoughts said she would have started me on bone builders. Medicine is a very creative field, some docs do one thing some another. And the best choice is?

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@jozer

Hopefully the best choice is the one in consultation with a physician who is keeping up with the latest research and a patient who has done her own research.

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Profile picture for musiclvr @llander1966

@andieg I'm curious, how long have you been using red light therapy and has it improved your DEXA scores?

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@llander1966 @llander1966 hi there please see my response to Squitirogloriq

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Can I ask you what is severe osteoporosis? What are your t scores. I just found out I have osteoporosis at -4 in spine and -3.6 in hip. I am new to this site and info about osteoporosis

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Profile picture for mmjhinger8 @mmjhinger8

Can I ask you what is severe osteoporosis? What are your t scores. I just found out I have osteoporosis at -4 in spine and -3.6 in hip. I am new to this site and info about osteoporosis

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@mmjhinger8

Glad you are here. Lots to learn about osteoporosis and the variety of ways that people are approaching care. Are you working with an endocrinologist? What are the suggestions for treatment are you considering?

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Profile picture for andieg @andieg

I appreciate that @squitirogloria 💕

I purchased a medical grade red light therapy pad intended to reduce pain in August, 2024. It was 1/2 off (even the “medical grade” ones often are).

You may have seen advertisements for red & blue light therapy masks with pictures of people wearing robot looking masks (😂) to address wrinkles & blemishes . Mine resembles a heating pad with dimensions of about 7” x16”.

I don’t mention the brand I purchased because
a. There have been improvements since I purchased 19months ago
b. Your research may lead you to different conclusions.

I recommend considering researching some on what medical grade red light is/how it works, how it can treat pain and, what types of products are for what conditions; for example, the face masks often include blue light and address acne and other skin conditions.

I decided to get a red light pad after reading several accounts from people in EDS /chronic pain FaceBook groups who said they were helped by the red light therapy. So I researched some and found while many “research studies” were done by the companies themselves (common when a product is new), I saw /read enough positives / promising information that I decided to pull the $300 out of savings to get.

I’ll add that I believe independent studies are underway. And, my sister said after her dermatologist did a laser treatment to address the pervasive pre cancer on her face, they followed it with red light therapy. ! I think the anti-inflamitory benefits may be generally accepted now (but don’t quote me!).

The type of pain red light seems to address may vary, & seems to be more muscle related. And I don’t believe it’s a miracle cure, but it helps put me to sleep after using on my neck and back and, sometimes it helps with my hip pain. At the very least it feels good to me as it seems to be a deeper penetrating heat than a heating pad. But again, everyone is different.

I believe most red light therapy pad product companies recommended to use it 15min at night every night for 2 weeks, I think, then 3x per week?

In terms of bone benefits- there are no scientific studies and I only saw one or two mentions which were claims from a manufacturer so I am very skeptical, but choose to be hopeful. 😊

Hope my babbling helped a little 🫣😊

Jump to this post

@andieg This isn't babbling. This is what I'd call wonderful help and support. Thank you for taking the time to help me, and all of us on this site. I'm going to look into this!

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Profile picture for mmjhinger8 @mmjhinger8

Can I ask you what is severe osteoporosis? What are your t scores. I just found out I have osteoporosis at -4 in spine and -3.6 in hip. I am new to this site and info about osteoporosis

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@mmjhinger8 It's indeed scary to first learn about osteoporosis. I just came into the field last December.
One of the best things I can offer you is that there are tons of people on this site and on other sites who've reversed osteoporosis naturally: food, supplements, exercise and BHRT.
It's worth taking your time looking into all your options.
You will be fine! We all will.

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Let's beat it! I plan on working hard to show the doctors it can be reversed. Your endocronologist sounds like a rheumatologist I saw...very negative. I am starting the ONERO program tomorrow, am changing up my diet to include more protein and calcium, and trying OSTEOStrong in April. Keep trying...don't give up! Also, maybe get a REM scan to see if maybe your bone quality is okay. Maybe go to a functional medicine doctor. I saw one on Monday and she made me feel much more optimistic.

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