← Return to Vasculitis or connective tissue disease breast involvement?

Discussion
Comment receiving replies
Profile picture for akerslauren @akerslauren

@SusanEllen66 thank you, I get a real kick out of myself sometimes hahaha.

I’m not sure of course, but I’m thinking small vessel? I actually think that I’ve been having mild attacks that eventually spontaneously resolve briefly over this last year. Last January, I had severe lower back, lower abdomen, and bladder pain. It would get worse with food, drink, or AFTER urination. I had intermittent microscopic blood in my urine but no infection per urinalysis. I had an enlarged lymph node, but no other abnormalities on the CT scan. It felt like someone had scrubbed my insides with a Brillo pad because everything felt so inflamed. My NRBC’s were elevated at the time as well as liver enzymes. I was in agony for most of each day for a month unless I kept heat on my lower abdomen and back, no meds gave comfort. The repeat ct scan to check on the lymph nodes a few months later showed no enlargement, but just numerous, scattered lymph nodes that were remarkable to my doctors, though they didn’t know what to make of it. They eventually went away.

I’m honestly not sure what’s triggering the breast discharge, it is happening spontaneously and I’ll find it in my bra when I undress or see it coming out as I undress. Heat from the shower and even the warm Doppler gel usually prompt the engorged feeling, though that also happens randomly as well. I’ve noticed drinking my normal daily cup of coffee triggers it (usually) and also while I’m eating.

My breast ultrasound and mammogram looked great they said, but they were just investigating for masses. I noticed a decent amount of red on the ultrasound imaging that wasn’t mentioned, even though it was directly behind the bleeding nipple.

My endocrinologist more or less told me “good luck” when I told her Prolactin was normal 😂😭. My rheumatologist also told me it was an OBGYN issue and not at all related to rheum. I admit, I wouldn’t have initially thought it was connected to the rheum but I had all my “bad” flare symptoms pop up at the same time this started.

No new soaps or laundry products and I have no idea what is going on with the itching! It’s so bizarre because of how quickly it starts and stops. It seems to happen at night more often that during the day.

Jump to this post


Replies to "@SusanEllen66 thank you, I get a real kick out of myself sometimes hahaha. I’m not sure..."

@akerslauren in my opinion, you need to be on prednisone.
I think you need the medication to calm all the issues that you are dealing with.
Then, perhaps you and your doctors can better understand what is going on with you.
Has anyone considered Lupus, or Lyme disease?

Hopefully, that awful pain doesn’t return, if it does, my recommendation would be to go to the ER. They may have some answers.

You obviously have done lots of research on your own. Generally, health care providers are not happy about patients getting their information online.
Just go to the appointment, state your symptoms, and let the doctors decide what is going on.

Please keep us updated. Blessings