@castell
You are incredibly lucky! Thank you for posting as more people need to be aware that positive results are possible, however, I think it would be important for others to know your mutations and whether they were germline or somatic, and how much of your pancreas was removed. Everyone is different, but the scientist in me would like connect the common denominators for your success of 10 years especially since you had metastasis to 2 lymph nodes. Please share which chemo drugs you were on. I had the distal pamcretectomy with 75% of pancreas removed and total spleen removal. Metastasis to 1 lymph node. I also had chemo (folfirnox) for 6 months. Biopsy of pancreatic tissue revealed KRAS12D, TP53, and ATM base substitution of unknown significance. I believe there was possibly hepatic artery involvement though that soft tissue area wasn't identified until 2 months after my surgery (it's stable now). My latest Guardant 360 or liquid biopsy shows only TP53 and SMAD-4 mutations; no more KRAS or ATM, surprisingly. My surgery was in tne last quarter of 2022, and I've been fighting its metastasis with every modality that I can think of. I feel ok, but it's spreading in the peritoneum and possibly liver again. My next step is try a drug that might be able to fight the CLD18.2 protein I have that's often associated with the potential for stomach cancer which may come from the peritoneal carcinomatosis. I'll post if I'm accepted into the trial for CLD18.2. I wish you continued success and hope that your response may help others.

@castell What does the creon do to help with not able to eat much. I am concerned with not getting enough nutrition when it is so hard to eat.