RSOs in cancer therapy

Posted by eightball123 @eightball123, 1 day ago

We are trying an RSO protocol for advanced prostate cancer BEFORE my husband starts conventional therapy. If anyone has insights or interests in this subject, we are open to discussion. Our choice to do this come from no clinical trials , but anecdotal evidence from a few people who have had excellent success. Since his prognosis was kind of grim, my husband thought this was worth a shot. Thankfully his oncologist agreed. He will be getting some radiation during the RSO protocol , mostly for pain.

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

RSO protocol has not been proven to actually work.

I was at a seminar where I asked a doctor about this, There has been no evidence that this helps in any way I was told. This was during a discussion about alternate solutions to prostate cancer.

I’ve also done some research into it and found the same thing. Doesn’t really work.

Prostate cancer is more a chronic disease than a deadly disease. People live much longer than they used to with the treatments and drugs that are available today. On top of that, there are new things in the works that will extend life even further. I’ve had it for 16 years, Had surgery then radiation and three more reoccurrences. I have a genetic problem BRCA2, which makes it pretty aggressive. I’m still around and I’ve been undetectable for the last 28 months. The drugs work.

I know people that have been given five year to live that are still around 10 and more years later. It is really foolish for a doctor to tell somebody how long they are going to live with prostate cancer.

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Profile picture for jeff Marchi @jeffmarc

RSO protocol has not been proven to actually work.

I was at a seminar where I asked a doctor about this, There has been no evidence that this helps in any way I was told. This was during a discussion about alternate solutions to prostate cancer.

I’ve also done some research into it and found the same thing. Doesn’t really work.

Prostate cancer is more a chronic disease than a deadly disease. People live much longer than they used to with the treatments and drugs that are available today. On top of that, there are new things in the works that will extend life even further. I’ve had it for 16 years, Had surgery then radiation and three more reoccurrences. I have a genetic problem BRCA2, which makes it pretty aggressive. I’m still around and I’ve been undetectable for the last 28 months. The drugs work.

I know people that have been given five year to live that are still around 10 and more years later. It is really foolish for a doctor to tell somebody how long they are going to live with prostate cancer.

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@jeffmarc Thank you for your input. Our decision was made based on a diagnosis of late stage metastatic
Prostate cancer. We know there have been no human clinical trials, though there is one forming in Kentucky .

Our information is from people we know who have had prostate cancer. We realize that anecdotal evidence isn’t proof.

We are happy that our oncologist says he will support us in this experiment by measuring PSA levels during the three months we are dosing with RSO. If we choose he ready to help if we decide to try ADT instead. I will post if there are interesting results

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Profile picture for eightball123 @eightball123

@jeffmarc Thank you for your input. Our decision was made based on a diagnosis of late stage metastatic
Prostate cancer. We know there have been no human clinical trials, though there is one forming in Kentucky .

Our information is from people we know who have had prostate cancer. We realize that anecdotal evidence isn’t proof.

We are happy that our oncologist says he will support us in this experiment by measuring PSA levels during the three months we are dosing with RSO. If we choose he ready to help if we decide to try ADT instead. I will post if there are interesting results

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@eightball123
Definitely let us know what you’ve experienced. I’ve done all the pot I’m ever gonna do in my life. Supposedly RSO doesn’t get you high. The thing is if you start increasing doses over time, the same sort of thing happens, you just don’t feel the high.

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@eightball123

With advanced prostate cancer, I can understand why you and husband may want to try RSO as a solution given some of the scary stories related to advanced cancer treatment. Numerous success stories aside for the moment, It might give your husband some pain relief and make him feel a bit better but you might also want to consider some metrics as to how long your husband does it before radiation. Time is not his friend so your doctor may be willing to give you some blood test metrics, other than PSA, to guide you. That would put some time limits on testing it as waiting too long can mean more spread and possibly more intense treatment with greater side effects.

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Yes, it is scary to delay treatment, but conventional treatment sounded scary too. He is old enough that living another five years feeling miserable isn’t all that inspiring. But we’ll pursue that if there is no improvement with the RSO. The oncologist has agree to help by running a test after one month , If there is no improvement after two months we probably won’t do month three. I say we because we are definitely doing this journey together.

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Profile picture for jeff Marchi @jeffmarc

@eightball123
Definitely let us know what you’ve experienced. I’ve done all the pot I’m ever gonna do in my life. Supposedly RSO doesn’t get you high. The thing is if you start increasing doses over time, the same sort of thing happens, you just don’t feel the high.

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@jeffmarc I have heard that some people kind of adapt to the high , but imagine were are talking 800 mg tHC so it is hard to imagine not getting high. I told my husband I will probably have to get a collar and leash for him. It promises to be an interesting 2-3 months.

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Profile picture for eightball123 @eightball123

@jeffmarc I have heard that some people kind of adapt to the high , but imagine were are talking 800 mg tHC so it is hard to imagine not getting high. I told my husband I will probably have to get a collar and leash for him. It promises to be an interesting 2-3 months.

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@eightball123
You will not need a leash - he will be "stoned", the slang used adequately to describe a person "high" on marijuana. He well actually be "down". Joking to the side, please be careful with experimenting with unproven and possibly harmful alternative treatments : (((. Often the timing of PC treatment is everything.

Wishing you all the best .

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Profile picture for eightball123 @eightball123

Yes, it is scary to delay treatment, but conventional treatment sounded scary too. He is old enough that living another five years feeling miserable isn’t all that inspiring. But we’ll pursue that if there is no improvement with the RSO. The oncologist has agree to help by running a test after one month , If there is no improvement after two months we probably won’t do month three. I say we because we are definitely doing this journey together.

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@eightball123
You don’t have to live five years, feeling miserable.

I had surgery 16 years ago and had radiation 3 1/2 years after that when my PSA started rising again. I’ve had three more reoccurrences but have been undetectable for the last 28 months.

Eight years ago, I had to start on ADT full-time. I’ve been on it since then. I’m not miserable, I have a normal life and can do Almost anything I could do before ADT. Because I am on ADT, I am no longer horny all the time. That has positives and negatives.

There are a lot of ways to get an erection, even if the nerves near the prostate are damaged or removed by radiation or surgery.

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We both are very aware that there is risk involved in alternative treatments. If my husband’s cancer was such that zapping him with radiation, or even surgery was a viable option we probably wouldn’t be going down this road . Whatever the outcome I plan to document this journey so that others that are considering it will have something to think about. We have communicated with one man , an old friend of a doctor friend of ours , and he has three other acquaintances , ranging in age from 53-84, have had success with this protocol. That doesn’t mean it will work for us. My husband is 79. He wants five more enjoyable years, not five more years of really uncomfortable “manageable cancer. It is a crap shoot . We know.

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Profile picture for eightball123 @eightball123

Yes, it is scary to delay treatment, but conventional treatment sounded scary too. He is old enough that living another five years feeling miserable isn’t all that inspiring. But we’ll pursue that if there is no improvement with the RSO. The oncologist has agree to help by running a test after one month , If there is no improvement after two months we probably won’t do month three. I say we because we are definitely doing this journey together.

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@eightball123

Don't believe everything you read, either scary stories & unproven treatments. Also, don't believe "had cancer" (past tense) stories, as they are very rare in reality.

There are plenty of good stories with conventional treatment too:

I was diagnosed with prostate cancer five years ago. I had robotic surgery with no pain or complications afterwards. It was like a non-event. Later I was on ADT with minimal side effects (none unpleasant).

I do have one sad story: My uncle avoided treatment until it was too late.

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