@prettypatti76 I'm sorry you feel bad even though you are being treated. I haven't had to deal with any pain, stiffness, or other symptoms since I started treatment. I took prednisone and Actemra for about a year, and I'm still taking Actemra, so those medications took care of all my pain.

A couple of weeks after I stopped taking prednisone, I had a couple of weeks where I felt very tired, and I also had some mood issues, with irritability and depression. It was unpleasant, but not severe. Other than that, I just felt a little flat for several months after stopping prednisone. I mostly felt ok, but I didn't have any extra energy. After about 4 months I suddenly felt better. I assume that was my adrenals recovering.