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Symptoms Concentrated in Legs?

Polymyalgia Rheumatica (PMR) | Last Active: Mar 5 6:24pm | Replies (13)

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Profile picture for amroo @amroo

@barracudacool I'm currently being worked up for possible PMR - but all symptoms are from the hips down, so atypical. After very thorough workup and medical history, nothing else fits so my rheumatologist is going with a potential PMR diagnosis, even though it's not presenting the classic way.
How are you doing now?

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Replies to "@barracudacool I'm currently being worked up for possible PMR - but all symptoms are from the..."

@amroo I’m pretty good. Down to 5mg of steroids. Taking Kevzara and methotrexate to get off them. My symptoms/flares are still mostly in my torso and thighs. How are your inflammation markers. Mine were crazy high. C reactive protein at 120 and sed at 85 so it made it pretty easy to diagnose. Although there are some other things possible with those numbers. Biggest problems I have now are cataracts as a result of three years on steroids. posterior subcapsular cataracts. More aggressive and come on so very fast. Just had my first eye done and omg the difference. So that can be fixed! It’s a freaking hard journey to be sure. Just take things one day at a time and listen to what your body is telling you. Take good care.