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Polymyalgia Rheumatica (PMR) | Last Active: Mar 5 11:55pm | Replies (101)
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@caroljeand Hello! First of all, I agree that getting off Prednisone (I call it the Devil Drug - because of all the potential damage it can do to your body.) If you see my note, please tell me about Kevzara. And, by the way, 78 isn't old!! I bet you are still beautiful : > )
Replies to "@caroljeand Hello! First of all, I agree that getting off Prednisone (I call it the Devil..."
@prettypatti76
Kevzara is a biologic made specifically to treat PMR. It’s a shot I self administer bi weekly. Google it…it’s a IL-6 inhibitor and helps with the inflammation and I was able to taper from abt 8mg pred to “0” in3 1/2 months. No side effects .
Covered by my Medicare and supplemental.
It’s 7 months later and hoping Dr takes me off it TOMORROW!
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@prettypatti76 I had to laugh at the “beautiful “ comment because I have some young friends that call me that…. I may have been in my earlier days but age and PMR pain takes a lot away from beauty!… but thank you😊.
I started Kevzara when I was on 5 mg of prednisone. It’s been a little over 4 months now. I am thankful to be off prednisone (only 10 days now) and hope that the injections (twice monthly) will keep me from pain and ever having to be on prednisone again.
I have received great support and knowledge on this site and could not have been able to navigate this disease without it. I know no one personally who suffers with it so it’s amazing to be able to share symptoms and experiences with those who understand.