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New spots showing up

Neuroendocrine Tumors (NETs) | Last Active: Mar 16 6:25pm | Replies (26)

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Profile picture for debbieg99 @debbieg99

I am 74 and was diagnosed last June with stage 4 neuroendocrine cancer grade 1, originating in the ileocecal valve. I was operated upon on August 4 to resect both segments of the left liver, the ileocecal valve, about a foot of large and small intestine, appendix and many lymph nodes. The doctors were very optimistic about having got it all. Three months later, a CT scan revealed further lesions in the liver and I was put on lanreotide. After 4 injections (4 months), I had another CT and MRI which confirmed little or no growth. The "tumour board" meets next week to decide whether surgery is in order, or possibly ablation. I interpret that I am having good results with the lanreotide holding further growth at bay. Has this treatment been considered for you?

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Replies to "I am 74 and was diagnosed last June with stage 4 neuroendocrine cancer grade 1, originating..."

@debbieg99, what were the results of the tumor board discussion? Any updates?