I am dealing with this now as well and unsure what I need to do. About ready to give up and not go further because I’m not getting answers (not because of the doctor, just because maybe the answers aren’t there). Diagnosed April 2023, IDC grade 2, stage 1 - nodes clear. Stated caught early, do surgery/radiation and ai but then positive oncotype added chemo. Initially ca 27-29 was 92, at end of chemo had dropped to 69. He was “happy with that” at that time. 2 months later, after radiation, still at 69 and started ai therapy. Did CT because it never dropped to “normal” and no evidence of tumor. Then it started up slowly, just 5 points so was told sometime this happens and as long as stable, just monitor. But within 6 months, back up to 87 so did pet scan and brain mri - of course no evidence of tumor and within 30 days, it went back to 69. Over the next 9 months, dropped to the 50s (52-57) and stayed there so he said complete remission and started 6 month rechecks. In December last year, it went back up to 90, 6 week recheck only dropped to 87 so again, pet scan and brain and again, no evidence of tumor. I was supposed to call and discuss options with him over the phone but haven’t because not sure I want to do more tests just to see if we can find something somewhere. I see him again at the end of this month so will discuss then but it may be decision time and figuring if I can live and survive mentally without going further. I guess I understand why there’s so much PTSD with this disease.