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Prednisone Taper Stories

Polymyalgia Rheumatica (PMR) | Last Active: Mar 5 11:55pm | Replies (101)

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@dadcue
It takes a lot to feel like exercising after PMR. I’m off prednisone for a week and a half and just on Kevzara. I’m waiting for my energy to return but the fatigue just makes me lazy. I hate this lifestyle and hoping that it’s just my body adjusting to life without prednisone. I do walk but it’s not enough to maintain this 78 year old body. Need to get back to more intense activity.

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Replies to "@dadcue It takes a lot to feel like exercising after PMR. I’m off prednisone for a..."

@caroljeand It sounds like your adrenal glands have a ways to go yet before they are fully functional. Two weeks after I stopped pred I had a couple of weeks of withdrawal, where I had some mood swings and fatigue. About a month after I stopped I felt my metabolism recover. It took about 4 months for me to feel fully recovered from the prednisone.

@caroljeand Hello! First of all, I agree that getting off Prednisone (I call it the Devil Drug - because of all the potential damage it can do to your body.) If you see my note, please tell me about Kevzara. And, by the way, 78 isn't old!! I bet you are still beautiful : > )

@caroljeand
Options for me include, pool walking , pool exercising, find a buddy and make the effort….the quicker you recover. And you’ll sleep.
Also, find a therapist/trainer who specializes in MOVEMENT/Mobility….my saviors