I would love to know also!! On 18 March it will b 5 years since I found the lump
I’m my right breast. I was started on Anastrozole august 21. I went from a women, I’m 74 next month, who walked miles every day to what I am now- I can just get to the bus stop!!! The side effects to Anastrozole, for me, was pain in my back that I can barely cope with!! and my joints also but by my back is the worst. 3 years ago my Doctor sent email to my oncologist to ask him to change my meds ftom Anastrozole to exemestane and on oncologist refused!! He said I’d still have the same side effects!! Needless to say, he is not my oncologist anymore. My breast care nurse got my prescription changed to exemestane. Hadn’t really made much difference cos the damage has already been done but I only take it 3 times a week instead of every day. I’ve oestrogen positive breast cancer and I know the Anastrozole was helping keep the oestrogen out of my body but no one explained to me about the side effects. I’m juky 2021 I had 2 rounds of chemo-I was meant to have 4 rounds but on my way to my third chemo, I collapsed and ended up in hospital for 5 days so I decided, I was 69, not to continue with the chemo. As I said, I was put on Anastrozole and bisphosphonate in august 21 and then in October I had 5 sessions of radiotherapy. After tgst I had a booster dose of covid vaccine. That woukd have been my third vaccine. I also had a flu vaccine at tge same time. I’d never had a flu vaccine before. In jan 22 we went to Spain for a break to get over covid and breast cancer. Luckily my brother and my sister in law were there cos I had to be taken into Torrevieja hospital cos I couldn’t breathe. I had pulmonary embolism. That frightened me more than the breast cancer. Long story, short, the doctor in Torrevieja hospital said my meds, Anastrozole and bisphosphonate, caused the clots in my lungs. I said this to my, then, oncologist, and he said absolutely no way was this right. In other words he was saying the dicot on the Spanish hospital was wrong!!! But yet oncologist took me off bisphosphonate!!! I did a load of research when I found my limp bit I never knew that cancer can thicken the blood. I mention the covid and flu vaccine for a reason. I can’t say, emphatically, that I got pulmonary embolism from the cancer meds it covid or flu vaccine cos there are too many variables, but all this has been brought to the forefront in my mind cos, from what i know, Catherine OHara, whom I absolutely adored as an actress, died from a pulmonary embolism brought on by rectal cancer. Jesus.., I’m worn out typing!!! I’m hoping this long winded post can help someone. I was lucky. I nearly died but I’ll be in a blood thinner for rest of my life but at least I’m still here x
@rosa1935 by the way I only take exemestane 3 times a week cos I read an article by a doctor/oncologist , can’t remember his name, that said cos exemestane stays in the system for 50 hours and that he was quite happy for women, like me who suffer side effects, to only take it every second day. Good luck, everyone