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Has anyone been diagnosed with Ehler’s-Danlos Syndrome (EDS)?

Bones, Joints & Muscles | Last Active: Jul 1 6:22am | Replies (23)
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@sue15
Im 59 & was diagnosed with hypermobile Ehlers Danlos by a rheumatologist.

It’s important to share why type of Ehlers Danlos you have. Classical? Hypermobile type? Vascular?

If hypermobile type, the best place to start is a physical therapist trained/experienced to address hypermobility (I’ve gotten injured in physical therapy by one who didn’t have knowledge/experience).
The second thing is to listen to the Bendy Bodies podcast as there are interviews with specialists.

If you have a different subtype, I would recommend looking at the Ehlers Danlos website for potential resources and finding a FaceBook group to see what they recommend. But you’ll also want to consider the advice as “data points”. Sometimes people have great intentions but may recommend something that’s counterproductive

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Replies to "@sue15 Im 59 & was diagnosed with hypermobile Ehlers Danlos by a rheumatologist. It’s important to..."
sue15 | @sue15 | Mar 3 4:40pm

@andieg yes, good point re type of EDS. I have Hypermobile. I’ll check the podcast out. Thank you so much for the advice. What kind of symptoms have you had/have?

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