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Profile picture for Lori, Volunteer Mentor @loribmt

Hi @lorieliebrock. Welcome to Connect. You came to the right place to be embraced by other (BMT or SCT) bone marrow transplant/stem cell transplant members. It can certainly feel overwhelming with the amount of information or sometimes, the lack of information preceding the transplant.

One of my closest friends is a woman whom I met while we were both undergoing our transplants. She had myelofibrosis. This was just about 7 years ago. We’re both in our 70s, feeling super healthy, in durable remission and enjoying our 2nd chance at life. While it’s not an easy journey and recovery is slow, it can mean a potential cure for our cancers.

There are a growing number of bone marrow transplant members in Connect and we’re more than happy to help you in any way we can. Here is a good place to read through some of our stories. We’re open and honest with our experiences.

My bone marrow transplant story: Will you share yours?
https://connect.mayoclinic.org/discussion/my-bone-marrow-transplant-bmt-story-will-you-share-yours/
Gvhd is a possible side effect of the transplant but newer protocols have helped mitigate the worst of the issues. When we get a stem cell transplant we are actually adopting a new immune system from our donor. The goal is to have a graft (new cells) vs tumor or leukemic reaction. But until the new immune system adapts to the body it has a tendency to be aggressive and wants to attack the body instead. To help prevent that, you’ll be on medications for a few months until things settle down.

Are you near your transplant center or will you have to relocate? Do you know if you’ll be there as an in-patient or will be recovering off-campus?

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Replies to "Hi @lorieliebrock. Welcome to Connect. You came to the right place to be embraced by other..."

@loribmt Slight delay with the donor, transplant now scheduled for March 18. We live in the Seattle area and the conditioning will be outpatient at FHCC and the transplant at UW Medical center, Montlake. Still optimistic in spite of this additional delay

@loribmt
We are from Michigan so more than 600 miles from Rochester so I was told I will need the 100 days near Rochester. We will be trying to get into GoL for that. My husband will be my caretaker with relief from my best friend. He says he does not need back up but I really think it might help for him to get a break in the middle of this. From all of the reading I have done (I am a researcher and dove into research papers that are fascinating) I am more worried about him than me.