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What is treatment for Gleason Score 8 at 80 years old in good health?
Prostate Cancer | Last Active: Mar 5 10:46am | Replies (87)Comment receiving replies
I just had a conversation with my RO concerning my PSA results post-SBRT w/ADT. I've been taking Orgovyx since early October and was hoping that I'd be near the end of it. My psa was in the undetectable range and I don't have my testosterone results yet. The side effects of the ADT are bearable but there is a distinct difference in the way I feel now compared to pre-ADT. My RO said that given my high-risk pc - no mets and two small lesions in adjacent lymph nodes which were treated with SBRT - the standard recommendation is one full year of ADT. I countered with letting me complete my 6 months of ADT, stop it, and then test my psa in 6 months. He said it was my decision but it's not the standard course of treatment. I'm 80, very active and reasonably fit and the thought of 6 more months of infrequent hot flashes and the tiredness. Does my proposal sound like a mistake?
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I was Gleason 8 and PSA = 11. I had 44 radiation treatments with 4 months of Lupron. I had to stop at 4 months because of severe and terrible side effects which included migraine headaches, 24 hour/day cold sweats from head to toe, brain fog, pain at injection sites, and in bones and joints. It took 6 months for the side effects to even start diminishing and for my testosterone to rise a little (122). Now after 8 months I still have side effects and absolutely no libido or erections at age 83. My PSA has been < 0.01. It seems to be common for side effects and low testosterone to last for 6 months or more. Makes me wonder why they need to give you ADT every 3 months when the dosage lasts for 9 months.
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@cadaddy
What was your Gleason score? That is a major factor in ADT decisions.
Did you have a decipher test? That will tell you how likely you are to have a reoccurrence. A lot of doctors go by that test to decide how long ADT should be given.
I’m 78 and I’ve been on ADT for eight years, you do get used to it?. I am very Fit, Run a mile on the track twice a day and go to the gym three days a week. Being active actually offsets the fatigue.
The hot flashes are something I’ve lived with for a long time. There are a number of solutions for them. I had Depo-provera Shots every three months and that’s pretty much stopped it. A more recent treatment is oxybutynin, Which seems to work quite well for a number of people I’ve heard from.