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Prednisone Taper Stories

Polymyalgia Rheumatica (PMR) | Last Active: Mar 5 11:55pm | Replies (101)

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@dadcue Motivation isn't a problem for me. I've been running for almost 50 years, with some of it at a fairly high level. Over that time I developed very strong habits, like working out regularly and eating right to support my running. I exercise some every day, and it never occurs to me to not exercise, just because it's such a habit. I either walk 4 miles or run 3 to 3 and a half miles with some walk breaks. I lift weights and stretch every other day. I've got a good collection of clothing and gear for bad weather, so I very rarely need to miss a day for weather. I'm seeing very slow improvements in my running, both pace wise and endurance wise. It's just a little discouraging at the slow pace of improvement. It could be age, or the GCA and PMR could still be active, or it could be the Actemra, or something else, like vitamin deficiencies.

I would recommend trying to establish a habit of exercising. Make it as enjoyable as possible, and try to eliminate potential excuses. Some people do better by exercising with other people. I really enjoy being outside and observing nature. I usually run and walk around a small lake, and there are seasonal differences with birds, wildlife, and vegetation.

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Replies to "@dadcue Motivation isn't a problem for me. I've been running for almost 50 years, with some..."

@jeff97

I have a Forest Gump philosophy about running. He felt like running but Forest Gump stopped when he didn't feel like running anymore.

"That philosophy embodies the essence of "running for the sake of running"—finding joy, peace, or release without needing a deeper purpose or external motivation. After running for 3 years, 2 months, 14 days, and 16 hours, Forrest stopped because he was "pretty tired" and simply felt done. It is a reminder to listen to your body and mind, embracing the freedom to start and stop on your own terms."

I think this philosophy also explains how PMR interrupted everything ... or maybe it was Prednisone ... I don't know. I didn't stop exercising as soon as PMR was diagnosed. I continued to work and I exercised. I was doing a 50 mile bicycle ride 5 years after PMR was diagnosed. I was on a higher dose of Prednisone when I hit the proverbial wall. I think the wall came tumbling down and I felt like the wall fell on top of me. It was all downhill after that but not in a good way.

Actemra has removed the wall that buried me but I still don't feel like running. I do walks and sometimes I get the urge to run but it doesn't feel like I'm running or anything that resembles running. I guess 15-20 years will do that to a person. I still get the urge but not like I used to.