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I'm the same with not having enough energy. I don't think I can blame that on prednisone anymore. I think it is an "age thing."
When I was younger -- I was more driven and working out was fun. Being in shape and staying in shape was still hard work but I never lacked the motivation. Now it seems like my motivation is lacking.
It doesn't help me when a doctor looks at my records and says that I have been through a lot. Reviewing the past doesn't help so much.
It helps me more when someone says I'm heading in the right direction and to keep doing what I'm doing. I don't think I'm ever doing enough. I need more encouragement to look forward to the future. Getting back into shape is future oriented. It seems like many of my barriers are now gone.
Replies to "@jeff97 I'm the same with not having enough energy. I don't think I can blame that..."
@dadcue
It takes a lot to feel like exercising after PMR. I’m off prednisone for a week and a half and just on Kevzara. I’m waiting for my energy to return but the fatigue just makes me lazy. I hate this lifestyle and hoping that it’s just my body adjusting to life without prednisone. I do walk but it’s not enough to maintain this 78 year old body. Need to get back to more intense activity.
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@dadcue Motivation isn't a problem for me. I've been running for almost 50 years, with some of it at a fairly high level. Over that time I developed very strong habits, like working out regularly and eating right to support my running. I exercise some every day, and it never occurs to me to not exercise, just because it's such a habit. I either walk 4 miles or run 3 to 3 and a half miles with some walk breaks. I lift weights and stretch every other day. I've got a good collection of clothing and gear for bad weather, so I very rarely need to miss a day for weather. I'm seeing very slow improvements in my running, both pace wise and endurance wise. It's just a little discouraging at the slow pace of improvement. It could be age, or the GCA and PMR could still be active, or it could be the Actemra, or something else, like vitamin deficiencies.
I would recommend trying to establish a habit of exercising. Make it as enjoyable as possible, and try to eliminate potential excuses. Some people do better by exercising with other people. I really enjoy being outside and observing nature. I usually run and walk around a small lake, and there are seasonal differences with birds, wildlife, and vegetation.