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Polymyalgia Rheumatica (PMR) | Last Active: Mar 5 11:55pm | Replies (101)
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@pah17 I'm still taking weekly Actemra injections. I'll be taking them weekly for 4 more months, and then every other week hopefully for another year. That will be 3 years of treatment. I haven't had any symptoms or flares of the PMR and GCA since I started treatment. It took a few months after stopping prednisone before I felt completely recovered from the prednisone. I'm feeling good in general, just not as much energy as I had hoped. That's something I'm trying to figure out.
Replies to "@pah17 I'm still taking weekly Actemra injections. I'll be taking them weekly for 4 more months,..."
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@jeff97
I'm the same with not having enough energy. I don't think I can blame that on prednisone anymore. I think it is an "age thing."
When I was younger -- I was more driven and working out was fun. Being in shape and staying in shape was still hard work but I never lacked the motivation. Now it seems like my motivation is lacking.
It doesn't help me when a doctor looks at my records and says that I have been through a lot. Reviewing the past doesn't help so much.
It helps me more when someone says I'm heading in the right direction and to keep doing what I'm doing. I don't think I'm ever doing enough. I need more encouragement to look forward to the future. Getting back into shape is future oriented. It seems like many of my barriers are now gone.