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Anyone have success with treatment for vaginal Lichen Sclerosus?
Autoimmune Diseases | Last Active: Mar 31 4:10am | Replies (170)Comment receiving replies
@frustratedlady50
Has she done a biopsy??
Was it ever confirmed that you had LS? Have you ever been on clobetasol? If she doesn’t do anything then it’s time to find a new doctor. We should not have to suffer. LS is a very real thing & should be treated as such!
It’s not all in our heads!
Why do we have to do all the research and end up educating our doctors on this. LS is exhausting. We need doctors to step up to the plate & learn more about this & help us. Please help us. Does anyone else feel this way?
Replies to "@frustratedlady50 Has she done a biopsy?? Was it ever confirmed that you had LS? Have you..."
@andwho, I have had LS for over 10 years and am presently in flare mode. I must use Clobetasol 2 X daily for 2 - 4 weeks, then once daily, then 2 X a week. I also use Premarin every other day no matter what is going on in the area. I am supposed to use Vaseline in between applying the Clobetasol and my numbing compounded Lidocaine. LS is a horrific disease and it makes leaving home difficult. I suspect I will die with this disease as the flares just keep coming. I had a biopsy and had to have surgery for pre-cancerous lesions. That was painful, but so is life. I hate this "no cause", "no cure" disease. I hope some of you find relief and we can all dream of a day when there is a better treatment than what we are now offered. With all good wishes, @joybringer1
Absolutely, it is autoimmune and no doctors where I live understand it. I would have to leave city. True of so many autoimmune diseases. Why don't all autoimmune organizations form a coalition to advocate for more funding. We are too busy supporting industrial military complex.
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I sure do!