@jenatsky Thanks, this is great! This is extensive and expensive but great news as I would have done anything. There's been a great deal of research in the U.S. including attempts to develop medication to delay the onset, possibly for a lifetime, giving hope for our next generations. As more people are diagnosed, due to recognition of symptoms, I'm hoping the fight for a cure will be more aggressive. Ten years and multiple neurologists was too long to wait for a diagnosis. He had three classic symptoms and fifteen minutes with a knowledgeable neurologist was all it took to finally diagnose. I'm pushing for education also.