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I have a Pain pump with Morphine, I'm still in so much Pain
Chronic Pain | Last Active: Mar 5 1:22am | Replies (38)Comment receiving replies
@anniesezu812
Thanks for the kind words. You’ve had quite a rough journey yourself. And you bring up 2 very important points. Stress is a killer, it can give anyone anxiety, and significantly increases your pain. Being busy and mentally occupied with something other then pain can take a while to master, but is ultimately the best thing we can do to not think, hence feel pain all the time. Last, but most important is the label we get indoctrinated with CRPS being the Suicide Syndrome. It’s unavoidable. You hear about in the PM doc waiting room, all over social media and from your own personal experience. I’m a member of the Invisible Pain Society. A professional advocacy organization that lobbies with the government & big pharma, as well as patient groups. I met the the current CEO when we were both RSD patients at the same doctors office. Now when she writes an article in their magazine, after the sign off, there’s a box below giving information how to get help when facing suicidal ideations. Those outside the chronic pain community have looked at me sideways when I discuss the first 10 years of this affliction and how many times I thought about it. I have lost 5 acquaintances by their own hand. And IMO, it’s not depression related, it’s desperation related to find a way out of hell, even for an hour…
Replies to "@anniesezu812 Thanks for the kind words. You’ve had quite a rough journey yourself. And you bring..."
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@bilt4pain So sorry for your losses.
I hadn't heard of the Invisible Pain Society. Assuming anyone can join??
Yes, with regards to anxiety, I have had many Drs look incredulously at me, " why are you so full anxiety??"
When my abdominal wall tore, I couldn't use my arms for most of the time, I now understand the muscular skeletal system but the DRS DON'T!!! So I was scared, I got no explanation at the time about inability to use my arms.
The worst is never knowing WHY your body re-acts the way it does. I have had to figure most of it out myself, because the Drs couldn't!!!
Like , why did i feel my muscles were micro ripping with Spinal Stimulator OFF but not yet removed. I surmised eventually overly irritated nerves were not sending correct signals to my muscles.
One Dr admitted to me they are very poorly trained in the muscular skeletal system/ dont really understand it well...I was shocked.
A friend of mine was also lost to intense pain. How i haven't been there is beyond me, I have suffered horric bodily sensations that no Dr would believe. Like many others I struggle to get adequate pain relief and that alone is depressing.
But YES I totally agree , anyone who "opts out " probably does so to escape pain. Labeling us as depressed is an easy cop- out for Drs.
I have been reading about how Tapping and Kinetic flow is supposedly helpful for pain but i think once pain reaches very severe stages, its very hard to eradicate. One wants to sit on the Pity Potty but ultimately that doesn't help.
I think the Eastern cultures may have better solutions to chronic pain, im still exploring, but Western Medicine stills falls short.
Best wishes to us all.