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ARSI PR wars: Nubeqa (Bayer) vs Erleada (J & J) lawsuit
Prostate Cancer | Last Active: 1 day ago | Replies (36)Comment receiving replies
my 2 cents: last July, I was prescribed Orgovyx and Erleada together...I took both about 3 weeks...over 5 weeks, I went to the ER 3 times from the horrible side effects ( heart palpatations, nausea, fatigue, appetite loss) ...finally, my RO suggested I drop Erleada ( funny how these drugs have an ethnic name ring to them )..at any rate, I stopped everything for about 10 days.. then went back on Orgovyx and finally, oncology team /insurance approved Nubeqa...and since then, no real problems with tolerating the two drugs..and so far, PSA has dropped dramatically from 61 to < .01- in about 5 months. SO for me, Nubeqa was dramatically better...I suspect both work very well, but you cant take what you cant tolerate, right ?
Now, going on 8 months, Hot flashes are really main side effect followed by some transient fatigue and sleep issues at times.
( thanks to Jeff Marchi for suggesting Nubeqa as alternative-I would have never known to ask for it)
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@xahnegrey40
I have heard this type of comment from dozens of people. Over at the ancan.org weekly advanced prostate cancer meetings There are a couple of dozen people at least (Almost 50 show up at each meeting) Who have switched to Nubeqa And are really pleased with it and many of them are using it as the only drug they’re on. I’ve also recommended it on the other three online groups I meet with and many people there have switched and have been really pleased with it, And start recommending it to other people.
The statistic about only one percent or less of people on Enzalutamide Having fatigue seems to be laughable. I’ve heard so many cases of fatigue from that drug. Not nearly as many people are on Apalutamide So a comparison is hard to draw, for me.
I am just a little dubious of the testing results versus real world experience of what I’ve seen and heard. I will not be able to comment on the reduction in brain fog for people who are just on Darolutamide, Because it really has not been discussed at all in any of the forums I’ve been on. I think that is something that is hard to judge in the older population.
Yesterday I was sitting down with a neighbor/friend For an hour, discussing a lot of different things. He’s about six months older than I am. We both kept blanking out on the names of things. He was just as bad as I am, And I thought my brain fog was the main issue. Maybe being 78 is part of the problem. I did have a lot more names on the tip of my tongue, that I brought out in our discussions, So the brain fog hasn’t gotten me down completely.