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Prednisone Taper Stories

Polymyalgia Rheumatica (PMR) | Last Active: Mar 5 11:55pm | Replies (101)

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Profile picture for jeff97 @jeff97

@pah17 Please be careful regarding possible GCA. I came close to losing some vision. so it makes me feel uneasy when I think about someone having untreated GCA. I didn't get my PMR and GCA diagnosed for several months because I made various excuses for my symptoms, like they were because of aging. sinus infection, etc.

I have read that headaches from GCA can occur anywhere on the head. I didn't have any headaches, but I did have mild scalp tenderness. I had several other symptoms too, like fever, pain in the cheekbones, night sweats, and jaw claudication.

It's good you are getting checked by an ophthalmologist. It was very reassuring to me when the ophthalmologist told me that I didn't have any permanent damage from the GCA.

I had mild afib when I was on high doses of prednisone (> 40 mg). It faded away as I tapered.

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Replies to "@pah17 Please be careful regarding possible GCA. I came close to losing some vision. so it..."

@jeff97 that is so helpful. It makes me feel less of a hypochondriac in reporting such subtle discomfort. I think I'll be on 40 mg of Prednisone for a while yet which if I understand correctly gives me a measure of protection. The other thing is that my PMR was somewhat atypical in that I never had any upper body pain. My pain was hips and thighs with prolonged morning stiffness and difficulty maneuvering up and down like getting out of a car.
How were you treated for GCA? Prednisone only?