I was diagnosed more than seven years ago and entered a clinical trial that included triplet chemotherapy — Gemcitabine, Abraxane, and Cisplatin — along with vitamin D. I received treatment two weeks on and one week off for 18 weeks, followed by 33 days of radiation.

I am now seven years and two months from diagnosis and remain on 5-FU every 14 days, infused over 46 hours. I do live with some neuropathy from treatment, which is a reminder that chemotherapy leaves its mark, but it has been manageable. My CA 19-9 remains within the normal range; the most recent value was 20.

What I have learned is this: chemotherapy is a strange companion. It saves you while it drains you. It brings hope while it takes strength. I learned to show up for infusions not because I wanted to, but because it mattered.

One practical lesson I’ve learned is the importance of seeking care from specialists who focus on pancreatic cancer. There are only a limited number of centers with deep experience in this disease. A second opinion at Mayo Clinic in Rochester is a very good idea. Having a pancreatic cancer specialist review your case can be essential, even if you ultimately continue treatment close to home.

I wish you strength and clarity as you move forward, and I am here if you ever want to talk.

Michael