← Return to Living with LPSVS (long post-COVID vaccination syndrome)

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@mlillich yes, post vaccination syndrome with PEM (post exertional malaise) you might get dizzy/vertigo head fullness sensation with tinnitus? All over weakness? Shortness of breath possibly tachycardia in and off? If you look up MECFS it’s exactly like Long Covid too. I have been 5 years sick from the vaccine. Also cognitive problems with memory, concentration issues. I also get internal tremors during waking up and falling asleep or going into a crash. I just started taking Nattokinase Bromelain and ordered another vitamin which of course I can’t remember the name 😭. There is a huge campaign of cover up and/or doctors who just don’t know but for some reason can’t just say “I don’t know”. Also….if your getting rashes or pain have your doctor test your ANA. I recently got dx with Lupus SLE and Sjogren’s. The vaccine triggered an autoimmune disease in me. So the vaccine caused my immune system to go nuts. Could also be spike protein wreaking havoc as well. Good luck and don’t give up. I was bed ridden for several years and I slowly slowly improved in terms of energy. Pacing is the key. Acceptance is another challenge but you don’t have a choice. Just go with it, keep positive and know it will get better albeit very slow and over a long time 👌. Good luck! Oh and find a doctor who has an interest and knowledge. Important for your mental health with all this and those are hard to find!!

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Replies to "@mlillich yes, post vaccination syndrome with PEM (post exertional malaise) you might get dizzy/vertigo head fullness..."

@tls5alex
OH MY GOODNESS!!! What you have been through.
I think my family did't believe me. I was bedridden for 6-7 weeks and had no idea what was happening after getting an innocent vaccine. I was actually in Tokyo Jan. 2020 when Covid broke out. I luckily had a nebulizer that I have not used in 10 years so I could give myself breathing treatments etc. I am an RN, but ignorant about all of the above that you messaged.
The only thing that I could eat for 2 months really was toasted sour dough bread. My stomach issues have persisted as well as brain fog and fatigue.
I live near Denver and did get a referral for National Jewish. They tested everything they could think of and I'm still not done with testing. I had some elevated cardiac labs and having an Echo next week. I hope all is negative but I am getting excellent care at NJ.
Thank you so much for reaching out to me.
TY
Monica