@csimmonds

The dialog happened before I was a member of this forum and it didn't happen on this forum.. I was new to any support forum at the time. It was the first question I ever asked on any forum. I was struggling to find a way to taper off prednisone. The conversation took place on a "Chronic Pain" forum so it wasn't specifically about PMR/GCA. There were a variety of reasons why people had chronic pain.

I joined a different PMR/GCA forum (not this one) that was promoting and advising me to take Prednisone for the rest of my life. I had already taken Prednisone for 10 years. I was on the verge of giving up and I wasn't going to try anymore to taper off prednisone. Seashell's words inspired me and her message compelled me to keep trying to taper off Prednisone. I succeeded a couple of years later.

Seashell was steroid dependent and was never going to get off prednisone. Her quality of life wasn't so good. She seemed to make it her mission in life to help me even though she was close to dying. She didn't want me to have the same fate as she did.

The dialog I had with Seashell happened a few months before she died. She was a respected member on the Chronic Pain forum. I'm happy that you are interested in what she wrote. I think she wanted to tell everyone. I only wish that she could speak to everyone who struggles to taper off Prednisone. The conversation I had can be seen in the link below:
https://www.healingwell.com/community/default.aspx