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Rheumatoid arthritis: How do you cope day to day?

Autoimmune Diseases | Last Active: Apr 18 6:41am | Replies (92)

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Profile picture for sweetundine @sweetundine

@llmartin I can sympathize! I’ve had rheumatoid arthritis for 30 years. Over the last three years, I have developed an erosive osteoarthritis, something that can be diagnosed definitively with a simple hand x-ray . But my previous rheumatologist missed this diagnosis. While under his care, I “failed” on about three RA biologics, because RA meds do not treat erosive osteoarthritis.

I now wonder if the drugs I “failed” on might be brought back into play for my preexisting RA. There are only so many RA drugs out there. And I’ve been at this game 30 years so I’ve run through a few.

Honestly, I think the underlying problem was the guy was not particularly good at listening to his patients. Nose in the labs kind of guy. Mistrustful of what patient say. If I had had more options, I would’ve run.

We so deserve rheumatologists that listen to us carefully and take what we are saying seriously. That is worth 1000 lab results. And, In my experience, these qualities are hard to find.

The good news is my new rheumatologist fits the bill. And, you can bet I’ll hang onto my relationship with her. I feel blessed.

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Replies to "@llmartin I can sympathize! I’ve had rheumatoid arthritis for 30 years. Over the last three years,..."

@sweetundine Wonderful to hear! True, autoimmune diseases cannot be reduced to lab work, and it seems like a lot more research is needed to understand this strange disease. Happy to hear you found a good doctor! Best, LL

@sweetundine I have RA, osteoarthritis and erosive osteoarthritis. My rheumatologist is dismissive and shrugs off the erosive and osteoarthritis because there's no good treatment for those I am allergic to NSAIDs and RA drugs have not helped. I have found that since I started Low Dose Naltrexone, the symptoms of all three are improved.