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Profile picture for heisenberg34 @heisenberg34

Greetings, fellow pain pump users (and those contemplating such a device). I have been a frequent commenter here and would like to pose a very important question. Since I have had no pain relief from my pump in almost three years, I have to wonder what's going on. Trial by injection with hydromorphone went great, dropping my pain down to about a 2. I currently stand at 3.5 mg/24 hours with six boluses of .35 mg each. After my last increase of ten percent, I notice that, after giving myself the fifth bolus, the pain in my feet seems to decrease quite a bit. Not every time, but often. My PM doc keeps telling me that I am already on a high dose, which is true. But, there others here on Mayo Connect who are at a higher level. I believe that I may need to go even higher to get pain relief. By the time I give myself the fifth bolus, it is usually late in the day (there is a two hour wait in between boluses. I am not sure the doc will give me a higher dose.
So, is there a problem with the catheter placement? Was it put in a less than optimal position. I had the pump checked under fluoroscopy a month or so ago. Everything checked out okay. I have seen some here saying that the placement of the catheter is best checked using a CT scan. I know this is a lengthy post and somewhat rambling, but I need some input. My PM doc is not very forth-coming with information or other suggestions. H always seems to be in a hurry to move on to the next patient. Thank you all for being such a help to me. I wish you all a blessed day.

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Replies to "Greetings, fellow pain pump users (and those contemplating such a device). I have been a frequent..."

@heisenberg34 I think that a catheter revision might be a solution to this. As I have said many times before, if the meds are not dropped on the right nerve/spot it simply will not work. I think you should ask for some orals for breakthrough pain because the pump isn’t always capable of dealing with all the complexities of each case/injury. This device ia the very definition of “targeted pain management”, the placement of the catheter matters a lot when dealing with pumps. Also I am a strong believer in having two medications in the pump to increase efficacy. If you are not receiving any relief then something needs to change, maybe a revision surgery is necessary to make sure the catheter is exactly where it needs to be. I hope you figure it out and get help and relief. This group will always be here for you, if anything just for a listening ear

@heisenberg34

very sorry that your suffering
you sound brave and I commend you
i look forward to being pain free in the next life
God never intended this for his children
I'm saying a prayer for you now