Need hope: Neuropathy from chemo

Posted by needshope78 @needshope78, Apr 24, 2020

Is there anyone going through neuropathy from chemo. If so how long until my mother will be able to walk again afterwards. It’s been 8 weeks every week gets worse

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nycmusic | @nycmusic | Feb 28 9:43am

Anyone have alternatives to cold capping (and cold gloves/socks) ? Any special lotions help ? Trying to help a friend…

beebe | @beebe | Mar 1 8:48am

In reply to @nycmusic "Anyone have alternatives to cold capping (and cold gloves/socks) ? Any special lotions help ? Trying..." + (show)

@nycmusic
Look into compression therapy for Neuropathy prevention. Here is an article on using compression therapy during treatment for breast cancer:
https://www.breastcancer.org/treatment-side-effects/neuropathy/compression-therapy
I wore support hose knee socks (30-40mmhg) during my infusions along with the cold socks. My feet still got neuropathy but think it was probably not as bad as it would have been if I did nothing and it never got bad enough to cause my Oncologist to reduce my Taxol dose.
For compression therapy on the hands I have read you can use disposable gloves in one size too small to help the hands. My hands actually faired pretty well with just the cold gloves (had two sets kept in ice chest with high quality freezer packs) and only got tingly on a few finger tips which resolved within 6 months.
Great you are helping your friend, the whole diagnosis and process can feel overwhelming.

nycmusic | @nycmusic | Mar 1 5:27pm

In reply to @beebe "@nycmusic Look into compression therapy for Neuropathy prevention. Here is an article on using compression therapy..." + (show)

@ thanks very much…so far, my friend doesn’t want to cold cap, or to use cold for hands and feet…she’s okay with compression stockings…. I’ll share your info with her and let her decide…she’s overwhelmed now, dealing with MS and uterine cancer…

nycmusic | @nycmusic | Mar 1 6:31pm

In reply to @nycmusic "@ thanks very much…so far, my friend doesn’t want to cold cap, or to use cold..." + (show)

@nycmusic the article really helpful ! Thanks so much !

lesleym | @lesleym | 2 days ago

I am getting Scrambler therapy at Mayo Phoenux. It has really helped me. It is offered through Palliative Care and my oncologist is who told me about it. I get the treatments for both hands & feet. I would definitely recommend she look into it.

beebe | @beebe | 1 day ago

In reply to @lesleym "I am getting Scrambler therapy at Mayo Phoenux. It has really helped me. It is offered..." + (show)

@lesleym, Is this what your are doing to help the neuropathy? How often do you get treatments?
https://www.hopkinsmedicine.org/news/newsroom/news-releases/2023/07/scrambler-therapy-may-offer-lasting-relief-for-chronic-pain-review-paper-suggests

lesleym | @lesleym | 1 day ago

In reply to @beebe "@lesleym, Is this what your are doing to help the neuropathy? How often do you get..." + (show)

@beebe Yes, it is!

lesleym | @lesleym | 16 hours ago

In reply to @lesleym "@beebe Yes, it is!" + (show)

@lesleym I'm sorry - I missed the second half of your question. My first treatments were for 2 weeks (Mon - Fri for 2 weeks for 1 hour each) and then I have been going back for "tune ups" every 3 months (5 days for 1/2 hour each).