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My first support group

Caregivers: Dementia | Last Active: Mar 13 5:17pm | Replies (21)

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Kristi, welcome to my world as caregivers. Yes, the working thing while my husband is still upstairs sleeping. The elephant in the room! (or not in the room!) When he does get up and I'm asking him to engage on something we talked about days ago, he's forgotten and is not good at any logical decision making. He's not even interested in going there again. My husband is still independent too, although I'm not a doctor., but I think my husband is definitely more tired than he used to be. Why I want him to sleep. I'm not sure if that's the MCI and what's happening in the brain, or the lequembe infusions he's on. I think it's both. My husband is self-centered too, but as you describe, definitely sweeter. He was always kind, but since the MCI, I notice something different - in the way he interacts with me at times and definitely in the way he eats. It's almost childlike picky, plays with the food, moves the plate around to position it. As for the food, he drives me crazy, but it's his plate, after I've made it and served him. Clearing the table is interesting too. He'll help do the dishes, but leaves most of the after-mess on the table, doesn't clear the table, like we have talked about multiple times. It's interesting the quirks...things that he'd never did before that seem to bother him now. Driving in the car - yes he is still driving - is a directional challenge. He's okay, he can do it, but not knowing where he's going even with my Apple Maps where I'm telling him, he doesn't listen so that creates minor melt downs. Enough so, I just want to drive. He's obstinate, wants to go his way, but go figure when he doesn't even know the area, so how would he know what his way is? It's all so unbelievably challenging, but like you all, it's what we deal with every day. I'm going to a 6-week caregiver class at the hospital next week, so I'm very interested in what they share. As caregivers, we hope for the best...plan for the worst. Thanks, for your share, and welcome to this group. I try to post every day something of value - as I'm like a sieve with this group and have gotten so many informational "tidbits" for now and for later. Thanks, to all for sharing.

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Replies to "Kristi, welcome to my world as caregivers. Yes, the working thing while my husband is still..."

@kjc48 kjc48 Please don't let him drive. He is driving by rote. In other words he can use the gas, brake and steering wheel , but is not thinking about where his is going, what comes next and what potential problems could occur. Would he be capable of slamming on the brakes if a child ran in front of him, a car stopped extra short, someone changed lanes, didn't look and cut him off? We all think our diagnosed loved ones are better than they are in decision making. Lack of adult decision making, inability to understand consequences and confusion about directions and locations are all higher level brain functions that are lost first.