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@bilt4pain I dont really have anything concrete to add to your post but to tell you i suffer excruciating pain levels. My story is all over this blog in places. I had a small abdominal wall tear which was left unrepaired for 6 yrs, it didnt show on scans. I was bedridden, couldn't walk or hardly eat, got down to 78 lbs , eventually after threatening " unaliving", ( the pain was horrific, it spread thru out my digestive system, which is now permanently damaged.), I eventually got repair surgery but due damage to my colon, I never fully recovered. The pain ultimately landed in my Celiac Plexus , ( solar plexus), bundle of nerves on the aorta....pain is excruciating and started affecting my spine.
Horrendous experience with a SCS, which rendered me almost unable to move due severe nerve irritation.
I too am now diagnosed CRPS. When removing the Stimulator they found i had a haemota and a spinal canal bleed, much scar tissue, so needed 2 laminectomies to stop the bleed. 6 months post surgery the nerves in this area and in my Lumbar ( i had a large bruise in lumbar immediately post surgery.) have gotten more and more irritated, to the point if I try to bend the Pain sends me into the stars...its 10/10 and worse. Eating still causes severe pain , i feel severe nerve irritation in lower lumbar soon as I start digesting...horrible sensation.
Im sorry for your divorce, I found stress highly aggrevates my CRPS , 20 mg of oxycodone doesnt touch the pain, neither did 2 shots of Dilaudid.
All I can tell you is try to keep stress free. I have done much reading about Neuroplasticity and how our brains learn pain. Its unlearnable but not easy.
The method goes, learn to be grateful for all the small things in life,try to shift to a positive state, hard in pain I know, but after 3 months it, this new Mindset is helping me.
I no longer fear my pain and try to understand what its telling me. Our bodies WANT to heal but cannot do so under stress. Like you I'm going thru a " divorce"...not literally, but have left an abusive relationship which kept me very sick, stress is a killer for pain. Managing alone is hard, I have been bedridden 90% of the time during last 2 yrs, due severity of pain but slowly with Peace its improving. There is no magic bullet for recovery but Im finding the state of " gratitude " is slowly helping me heal...the body needs Peace, no stress. All I can do in this post is offer support but a shift in Mindset has truly helped me....my pain hasn't magically disappeared but when im able to be a little busy, i'll have 30 mins when pain doesnt dominate my World, im trying to build on that.
Good luck, sorry this is long, your post touched my heart....CRPS isnt called the suicide disease for nothing...

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Replies to "@bilt4pain I dont really have anything concrete to add to your post but to tell you..."

@anniesezu812
Thanks for the kind words. You’ve had quite a rough journey yourself. And you bring up 2 very important points. Stress is a killer, it can give anyone anxiety, and significantly increases your pain. Being busy and mentally occupied with something other then pain can take a while to master, but is ultimately the best thing we can do to not think, hence feel pain all the time. Last, but most important is the label we get indoctrinated with CRPS being the Suicide Syndrome. It’s unavoidable. You hear about in the PM doc waiting room, all over social media and from your own personal experience. I’m a member of the Invisible Pain Society. A professional advocacy organization that lobbies with the government & big pharma, as well as patient groups. I met the the current CEO when we were both RSD patients at the same doctors office. Now when she writes an article in their magazine, after the sign off, there’s a box below giving information how to get help when facing suicidal ideations. Those outside the chronic pain community have looked at me sideways when I discuss the first 10 years of this affliction and how many times I thought about it. I have lost 5 acquaintances by their own hand. And IMO, it’s not depression related, it’s desperation related to find a way out of hell, even for an hour…