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kaki068, it is difficult to get adequate pain management because of the current attitude toward the medications. I'm sorry you are having this undeserved experience. It could be helpful if your pain physician made medication available for those times when the pain gets out of control. It may be that gets out of control because you are already (slightly) undermedicated. You may even be flagged at the local ER as "drug seeking."
In response to problems with drug addictions the tide turned against pain medications. instead of making reasonable guidelines for patients with painful conditions, those patients have been left to suffer. They aren't even great medications for pain. They are just better than nothing.
You might talk about this with your pain specialist. They might be able to give you something to reserve for use in extreme times of pain. But state and federal regulations are limiting their prescribing methods.
There isn't any excuse for the horrible doctors. I'm glad your husband is there to try and make them understand.

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Replies to "kaki068, it is difficult to get adequate pain management because of the current attitude toward the..."

@gently Thank you, Gently. My husband goes with me to all my pain medicine appointments and we’ve told my doctor about instances of ER visits. I do feel so fortunate that he prescribes as much as he does but he will not prescribe anything else for me. He’s made that very clear. Even though my husband does let him know about my physical and mental state when I have horrible break through pain (think convulsing, hyperventilating, screaming, crying , begging for d**th, inability to respond to my husband…) Once I get that far, we can’t do anything at all to get control of it. It’s truly devastating what my pain has become over the years. I’ve wondered sometimes if my husband should just take a video of me whenever I get that bad so my doctors are able to witness it for themselves. I know that sounds awful and probably a bad idea but at least it would provide a concept of what I go through.