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27 year old son first seizure March 2025, still having small seizures
Epilepsy & Seizures | Last Active: 2 days ago | Replies (6)Comment receiving replies
Do I have your permission to copy and send to my neurologist? Professional ethics will not allow him to give specifics, but I think he'll provide a few interim recommendations (testing, etc.). I'll share with him my participation in our support group. I have compassion for your family. From personal experience, my reduction in seizures was getting more sleep. It is a major trigger for seizures
Replies to "Do I have your permission to copy and send to my neurologist? Professional ethics will not..."
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@royanthony yes please. He was diagnosed with nocturnal seizures so the thing he needs the most is what is hurting him. The neurologist responded about an hour ago and suggested taking Xcopri which has horrific side effects like a life-threatening rash!! Considering he already has rashes, probably NOT a good idea, also leads to heart issues where you could just drop dead... How is this a good med for him. He has a wife and 2-year-old son, this news just terrified us all.