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@roisin11

I had the same bad reaction to it. I just had my 1st infusion feb 25th. I woke up yesterday with a very high fever, tylenol barely touched it. I had to basically sweat it out. I have bad bad bone pains all over my body. Even my jaw bone hurts 🙁
I got it due to having a very rare bone disease that has no cure. Just can mange symptoms with Bisphosphonates. Right now there is only 2 for my rare disease. Im nervous to get it done again if my body reacted this bad to it. I been staying hydrated so i dont get it. I even threw up in middle of the night, the night of my infusion. Dr said if i have bone pain a few more days to let her know

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Replies to "@roisin11 I had the same bad reaction to it. I just had my 1st infusion feb..."

@crissiec, you might ask your doctor about a short course of prednisone. Sometime the cytokine release is self sustaining. There isn't a way to remove the medication from your system. But you can stop the cytokine cycle.
No one wants to take steroids with osteoporosis. But the 5 day pack is said to cause less damage to the bone than the continuing inflammation.
Best wishes.