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ThankYou Sue! What a gift that someone has responded.I did not have any rehabilitative follow up. My cancer was treated at Dana Harbor Institute in Boston and I live on the northern Canadian border of Maine so it is quite a trip and thank God for angel flights. I am a retired equine learning facilitator and do ride so balance is only part of the issue not all of it however I have been falling off horses all my life so I do have some TBI/post concussion and I believe that the radiation has made that worse with scarring and other factors. I am 71 now and stay as active as possible, but have downsized to two horses and a cat in a small house from 12 horses and ponies and six kids in a big old house. Pain is a huge issue. Chronic pain which there is no understanding of TBI and related issues in this area. I traveled to Minnetonka Minnesota to the functional neurology center for some diagnostics and rehab and still do my homework which is painful to my eyes, but I do what I can do. I started having TBI issues of flooding about six years after my cancer and radiation. This was well before any significant head injury and includes hyperacusis. Great website in Canada: nbia.com has some nice videos that I couldn’t relate to at the time and help family understand what I was going through. Meanwhile, getting old it doesn’t work lol doctors just keep telling me to keep doing what I’m doing now; caring for a little farm with two horses and riding whenever possible with friends that come by. Outdoors is my medicine and volunteer work as well. I guess there is no cure for surviving cancer treatments? But I am sure so many people live with greater burdens. Will check out the mushrooms, don’t forget the beet root!

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Replies to "ThankYou Sue! What a gift that someone has responded.I did not have any rehabilitative follow up...."

Hi @ponygirlnd, I see with this recent post, you continue on your quest for answers and support. I have merged the 3 related discussions into one discussion so you can see the helpful replies you've received from several members like @hrhwilliam @sepdvm @mojo244 and @jw9. You can read them from the beginning here:

- Do late effects of sinus radiation contribute to TBI/concussion symptoms? https://connect.mayoclinic.org/discussion/does-late-effects-of-radiation-contribute-to-tbi/

I appreciate your sharing more of your story in this post https://connect.mayoclinic.org/comment/1515477/

@hrhwilliam will also be interested to learn that you are a retired equine learning facilitator.

@ponygirlnd, can you share a bit more what TBI flooding looks or feels like for you? What helps you when this happens?