My sweet hubby is in year 8 of Lewy Body Dementia. A few years ago, he would ask to go home, and I simply reassured him that we were at home and often we would walk through the house and talk about each room. Other times, I would walk in the bedroom, and he would be packing his clothes military style (rolling/compacting/items together, etc) as if he was being deployed, and often he would even express that he had to "get out of here." We talked about former deployments and ended with the conclusion that he was being deployed "tomorrow," and, later I would unpack everything, so he could re-do it again and again. As time went on, it seemed as if he simply needed to be reassured that he was in a safe place. Now, he rarely says the word "home".....and he doesn't always recognize the rooms in our house. He cannot be left alone for even a few seconds because he is a high fall risk, hallucinates about the location of toilets (learned from that messy mistake quickly), and vividly hallucinates in general....so now I miss the times where he could be left alone or out of sight for a period of time - even if he made a mess! This journey is one that is constantly changing in the most amazing ways and also contains changes that include some bizarre, unexpected twists and turns. As caregivers, we are on alert 24/7 - even when we get a rare break, we never seem to let go mentally.....and that is OK. We do the best we can with the challenging moments we face and hope that at the end of the day we can get a little rest to do it all again tomorrow. Praise for all who are lovingly on this dementia journey....we do this with very little instructions and have to figure out the uniqueness of our own loved ones needs. While I wish this was not what we have to face, the reality is we are facing this. As for me, I am determined to do the very best I can every moment for this most amazing man God gave to me. Our plans have changed, but not our love, and at times, when life seems so different and difficult, I pray that I can pull from that reservoir of strength and determination to succeed for my precious husband as I know he would have taken such great care of me if the roles were reversed. God bless all who walk this journey with faith, hope and love.