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Prednisone Taper Stories

Polymyalgia Rheumatica (PMR) | Last Active: Mar 5 11:55pm | Replies (101)

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@stonewheel

I'm so happy someone actually read that dialog. Seashell completely changed how I thought about "long term" prednisone use. In the "short term" I think prednisone is a good medication. I don't know when short term transitions to long term but it is characterized by a decline in a person's health and well being. I was on the decline at the time and doubted that I would live to be 70.

I never met Seashell in person but she sent me her picture before she died. Her story was absolutely incredible. I took it to heart when she told me that I needed to "preserve whatever adrenal function I had left."

We discussed "quality of life" issues on long term prednisone. She said at the end of long term prednisone use there was no quality of life when a person has total adrenal failure. She said every day was one of overwhelming fatigue and losing the will to live to the extent that she was ready to die. She didn't want to return to the land of the living when she was in a coma for six months after her adrenal crisis. Apparently ... she was sent back with instructions to tell someone about her experiences.

I only post the dialog so she can reach a wider audience and tell more people.

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Replies to "@stonewheel I'm so happy someone actually read that dialog. Seashell completely changed how I thought about..."

Of course I read it all. You’ve honored her (as she referred to her presumed purpose/reason for resuming consciousness, after her 6 month coma) graciously. Thank you for sharing as it was full of wisdom and sound advice.
It was educational and I appreciate it, from you and her. I pray she’s blessed.